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Collecting health information on the citizens of Maui County is essential to better understand the current challenges to the health of residents.
About the “Right to Health” Registry
Participation in this registry is entirely voluntary, and you do not have to share any information you do not want to. With few exceptions, you can simply skip questions that you prefer not to answer.
Your personal information will remain anonymous and will be used by us and researchers working with us to review and analyze your de-identified data (without your name or identifiers) to inform the public, including policy makers and health care professionals. By participating, sharing your stories, you are helping to provide missing data about the health status of residents.
From time-to-time we may be contacted by researchers who are recruiting patients for studies and clinical trials (for example testing new treatments). We will let you know about patient-centered clinical trials so that you can decide whether or not you want to contact the researcher.
You are also free to withdraw from the registry at any time without having to provide any explanation. Simply contact us and all of your data will be removed from the database. Data accessed or assigned to a specific study prior to your request for removal cannot be retrieved from researchers that have already accessed it.
Important points about the”Right to Health” Registry
We are asking you to relate to us your personal health stories, and the area you live in.
We are not confirming any specific causes of health issues.
We can contact you if you would like further testing such as urinalysis, dust and water samplings.
Instructions: Please read the survey questions carefully and answer as accurately as possible. Complete one form separately for each individual or member of your family.